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Notes / Questions
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PKB Invite By SMS
GS: What if the mobile number is for the Parent/Carer not Patient
PKB: If it is the Carer’s Number it will just result in them signing up to PKB as themselves. There is no IG risk.
GS: If a patient accepts the Invite how does this fit in with our workflow?
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GS: Are there restrictions on us only being able to access “our” patients?
PKB: Any data you access is logged. You should only access data you have a right to access. If you access data you shouldn’t that’s your responsibility.
GS: Not sure this quite answers the point if we use the system other than in a per-NHS Number manner.
GS: If we had to do it 1 request per NHS Number periodically how
GS: Can we retrieve only new/changed data? Or just patients who have been updated?
GS: Does/Should PKB respect the National Data Opt-Out
GS: With GP Data does it respect Type 1 Opt-Outs? ( https://www.nhs.uk/using-the-nhs/about-the-nhs/opt-out-of-sharing-your-health-records/ ).
GS: Does the returned data show the source of the data?
AA: Can we retrieve data for patients that haven’t registered but are still linked to us?
PKB: Yes
AA: Is there any rate limit for API calls?
PKB: No
GS: I think this would need confirming with someone more technical such as Andy Clowe. Previously they’ve complained that we’ve overburdened their Live environment.
AA: How much GP data is on PKB and what does the future hold?
PKB: Currently, about 500k GP records on PKB. Expecting 2.5 million soon as London GP’s come on with PKB
GS: If you wanted to wanted to retreive data “by Team” rather than “per NHS Number” can you hide membership of a Team from a patient, or is there otherwise a method of creating a cohort? The scenario I have in mind is where we wanted to make a sub-cohort of people with particular medical attributes but felt it would be inappropriate for the patient to see themselves labelled as such.
Patient Data - Coding Standards
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GS: Refresh memory about what happened with the “Sabine” Survey Project - basically did we return XML or PDF to the Units?
GS: NPEX
GS: Send SNOMED Codes to PKB.
GS: Send Pre/Post LOINC Codes to PKB
GS: Send Screenshot of typical renal unit from PV.
GS: “Send screenshot/URL of Clinics to UKKA.” [This may be the URL Darryl provided].
AA: Attempt some test retrievals from the API, especially Imperial patients (Radar only)