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Suggested Process
Patient Enrolment
The patient signs up to PKB
The patient contacts the Renal Unit and completes a consent form.
The patient is added to the Renal Organization
We are assuming that the Organizations will only ever contain patients from Renal Units (Main, Paediatric, Satellite etc.).
Although there isn’t a need at present to send additional data for patients who are only attending a hospital which sends data directly to PKB (for example Imperial) we think it worth considering if this process would work with these without us having access to non-Renal patients.
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UKRDC Sending Data to PKB
The UKRDC will have credentials for each of the Renal Organizations
For each of the Organizations the UKRDC will make an A19 query for each of them asking for patients who have joined within the last X days.
The original idea was that each NHS number would be queried individually, triggered by a unit sending data for a patient for the first time. While this works with the “PV XML” feed where the feed being turned on correlates to the patient joining PKB we can’t make that assumption with an “RDA XML” feed and the alternative of continuous checking of each patient without an existing PKB Membership would be too resource intensive.
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