Description

Optimising Engagement in routine Collection of Patient-reported Outcomes into Diseases

This project is centered around collecting Patient Reported Outcomes electronically. Only two of the three surveys in the current paper survey are to be included. The Symptons Score and EQ5D.

Who

Lead researcher Sabine Van der Veer Manchester University sabine.vanderveer@manchester.ac.uk

Fergus Caskey is the Lead for the UKRR

Units Involved

• Lister Stevenage
  David Dixon | Renal IT Systems/Application Specialist david.dixon6@nhs.net
  Mobile: 07913 039328
  East and North Hertfordshire NHS Trust
  L84 | Renal Medicine | Lister hospital | Coreys Mill Lane | Stevenage |
  Hertfordshire | SG1 4AB | www.enherts-tr.nhs.uk
• Salford
  Andy Child Senior Systems Developer IM&T
  0161 206 0315
  andrew.child@srft.nhs.uk
  Salford Royal NHS Foundation Trust
  1st Floor Turnpike House | 631 Eccles New Road | Salford | M50 1SW
• Kings - renalware
  Tim Crowe 
  CAIRNS, Hugh (KING'S COLLEGE HOSPITAL NHS FOUNDATION TRUST) <hugh.cairns@nhs.net>
  ELIAS, Robert (KING'S COLLEGE HOSPITAL NHS FOUNDATION TRUST) <robert.elias@nhs.net>
  IT?
  OMIGIE, Joe (KING'S COLLEGE HOSPITAL NHS FOUNDATION TRUST) <joe.omigie@nhs.net> (apparently Cardiac IT Lead)
  MOHAMUD, Ahmed (KING'S COLLEGE HOSPITAL NHS FOUNDATION TRUST) <ahmed.mohamud@nhs.net>

UKRR Involvement

The aim is to use Patientview to allow patients to enter their survey results directly. The data collected via Patientview will then be sent back to the participating units for display with the patient record. The idea is that patients can fill in the survey using tablets with in the unit with the results being available to the doctor during consultations. There is no requirement for this to be "real-time" though clearly this would be a long term target.

Requirements

Technical Specification

This is the technical specification provided to the Renal Units and Solidstate to define the the work.

OPT-ePRO_Requirements for EHR developments_V1.0_V181130.pdf

Work breakdown

Solidstate wil be required to modify Patientview to support Survey Entry (This has already been done for one of the other specialties) There will also need to be a method by which this entry function is enabled for patients who are part of this project. The collected data will be saved and presented using a modified version of the current Survey pages. (Part of the project is about the design and layout of the gathering and the presentation of the data in PV) This is currently scheduled for End of January.

The collected surveys will then need to be sent back to the UKRDC which in turn will forward the surveys to the units for the display and storage against the patients record. This will involve the definition of a process and interfaces. The participating units will need to modify their renal systems to receive the data, display and store the data.It is likely the data will be transferred in the survey xml format already in use to upload a survey to PV. Currently the surveys are saved using snomed codes which should be used in the RDA format. 

This work is part of Work Package 2 of the proposal and on the Gantt Chart.

Time Scales

3 Year Project starting March 2017 with the UKRR element likely to kick off around May with work to be completed, tested and working by December.

December 2018

Timescales have slipped due to ethics approval and contract signing. Kickoff of using the process is now April (ie the full process needs to be fully tested using staging and then migrated to live by then). SSG have coded the patientview element planning to test sending xml files end of January 2019. Renal Units are currently starting work on implementing the display in their renal systems and putting in place a transfer process which is initially sftp push from UKRR. UKRR need to modify the incoming channel from PV to filter the survey xmls and route them to the renal unit sftp process and also store them in the repository.