UKRR: This is required for V4 & V5 of the UKRR Dataset.
As with the UKRR Quarterly Collection our approval to collect data under s251 without individual patient consent requires that patients be given the opportunity to Opt-Out.
Where this happens an Opt-Out record should be sent to the UKRDC to record where this happens. The demographics should also be removed unless the patient has joined one of the individually consented programs (such as PKB, RADAR, SIMPLIFIED). In this situation we will remove the demographics at the point we extract the data from the UKRDC. More details can be found here.