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UKRR data are to be used for objective 2.
Data supplied from UKRR
To be shared with NHS Digital for third party data linkage (for all patients with ERF diagnosed at any time up to 31 March 2017 and alive at 1 April 2009):
- Local identifier (for linkage back to UKRR clinical data)
- IDN01 (Patient Surname)
- IDN02 (Patient Forename)
- IDN03 (Date of birth)
- PAT00 (Sex)
- PAT13 (NHS Number)
- PAT23 (Postcode)
To be shared with ICNARC (for linked patients only):
- Common identifier (supplied by NHS Digital)
- PAT33 (Date first seen by Renal Physician)
- Date of FIRST EVER renal replacement therapy
- FIRST EVER renal replacement modality
- TXT00 – Date of start of treatment
- TXT01 – Date of end of treatment
- TXT02 – Treatment modality code
- Transplant date
- Transplant number
- Graft type
- PAT40 – Date of death – set to 15th of the month
- PAT42 – Main cause of death 1
- PAT43 – Cause of death 2
- PAT44 – Cause of death free text
- QHD00 – Date of HD/PEX session
- QHD41 – Haemodialysis/ Plasma exchange
- ERFAJ – New ERA-EDTA primary renal diagnosis
- ERF04 – EDTA primary renal diagnosis
- ERF07 – Secondary renal disease code
- ERF09 – Primary renal disease free text if no code is available
Who
Doug Gould <Doug.Gould@icnarc.org> - Senior Researcher
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