UKRDC Dataset
Questions and Answers - UKRDC
Question | Answer | Response By |
|---|---|---|
How should the UKRR’s Care Planning data be sent? | Via Assessment entities https://renalregistry.atlassian.net/wiki/spaces/UD/pages/2341634049 | GS |
Are we (Renal Supplier) meant to sent anything in the Transplant List entities? | No, these intended for the UKRR to store data we receive from NHSBT. | GS |
Should co-morbidities and diagnoses both be sent using the diagnosis.xsd ? | Yes, except for Primary/Secondary Renal Diagnoses and Causes of Death which should be sent in as separate entities. It is okay for a disease that has been selected as a PRD to also be sent as a generic Diagnosis if it is recorded in both places in the source system. | GS |
How do we record Diabetes and Malignancies? | You should add a Diagnosis record with the codes -
Negative diagnoses should be recorded using the same codes but setting VerificationStatus to “refuted”. | GS |
How should the modality be sent in a Treatment record? | AdmitReasonCode. See | GS |
How should coded fields be supplied? | If the UKRR has published a mapping to SNOMED under then we would like data to be sent to the UKRR using those codes rather than the UKRR ones - however this is not yet possible in all cases due to SNOMED itself being incomplete. If your system uses SNOMED natively then we would welcome discussion about submission of the actual codes you record, with some exceptions such as Primary Renal Disease where for consistency we need you to choose from a standard pick-list. | GS |
Which servers should be used to sent files to the UKRDC. | We have -
You will be supplied with separate Live and Staging logins which control which instance of the UKRDC the data will be loaded into. Note that sftp.ukrdc.org is different from pv1.patientview.org which is where most “PV XML” feeds have been being sent so a firewall change will likely be required. | GS |
Can a System Supply Data for Multiple Renal Units? | It is expected that files will share a common SendingFacility where
| GS |
Is it justifiable for full medication record to be included e.g. contraceptives, medication for mental health etc? | It is correct to point out that there are several medications which we are unlikely to use to make a quality improvement measure of kidney care, or that would be sufficiently accurately recorded. We would be happy for a unit to limit the types of medication which they sent to the UKRR to a) Treatments for anaemia, b) immunosuppression, c) Treatments for CKD-mineral bone disease, d) treatments for cardiovascular risk reduction (including BP medication, treatments for diabetes, anti-platelet medication, statins, SGLT2 inhibitors or treatments for heart-failure).Many centres will find this difficult to achieve however, especially as the same data-feed will also be used for the patient-viewer in many cases (where a patient may well expect to see all their medications listed). | JM |